All Night Long

Have you ever wanted something so terribly that you ache inside?

The only thing a mother wants to do immediately after giving birth is hold the baby.  She can not get that child into her arms fast enough, and once there, she can at long last gaze into the eyes of her little one.

I didn’t get to hold John for his first 22 days.  It nearly killed me.

Because John’s intestines were exposed in utero, he was at high risk for contracting infection upon delivery and beyond.  Even though the team did a great job containing his intestines in a plastic “silo” bag, the hole in his stomach was wide and painful, hence no holding until a series of three surgeries cinched it shut.

During those eternal weeks of waiting, my maternal instincts nearly drove me mad, and Christian and I did everything we could to get as close to John as possible.  We held his little hands and stroked his tiny foot (the other bore an IV).  We kissed his forehead and brushed his cheeks around the medical tape.  We clung to every touch and did our best to let him know we loved him and hovered near.

One fine day, a surgical nurse showed us how to slide a hand, palm-side up, under his shoulder.  We were all smiles as we took turns, sharing this new means of snuggling our son.  Part me initially felt ridiculous rejoicing in something seemingly small when compared with the end goal, but it felt so good to stroke his back and feel him press into my hand.

He yearned for more, too.

I’ll never forget walking onto the unit with my father that twenty-second day.  John’s wonderful nurse, Cathy, saw me and smiled.  After I greeted my sleeping son, I walked over to sit in the rocker.  Cathy’s smile disappeared as she watched me settle in.

“Mom – aren’t you going to hold him?”

I gasped.  “Can I?”

“Haven’t you held him yet?”  I shook my head, breathless.  “Let me check, but since Dr. Flake has closed his belly, I see no reason why not.”

She bustled away while my dad and I exchanged excited glances.  I couldn’t see his face (we’d both gowned and masked due to the Swine Flu epidemic sweeping the nation), but our eyes said it all.  Nurse Cathy bustled back into the pod, beaming.

“It’s a go!”

I squealed with delight and rushed to wash my hands as she set about untangling John’s tubes and wires, sensing the urgency of getting this boy into my arms.

All at once, he was there, staring up at me, so beautiful.  I could barely see him through my tears, smiling all the while.  He tolerated it for about five minutes and then grew highly agitated without a solid bed beneath him, so I returned my little bird to his nest.

Within ten minutes, he’d changed his mind and called to me so sweetly.  I rushed to his side and complied with his request.  This time, he didn’t look back as he settled in for the long haul, falling asleep, his face awash with peace.

I didn’t want to leave.

My sweet Hannah needed me back in Macungie that evening, so all-too-soon, my dad tapped my shoulder.  He’d sacrificed holding his grandson so that I could enjoy every minute.  It took everything in me to tear myself from John’s side, but I finally mustered the strength.  Thank God he was sleeping – I don’t know if I could have done it otherwise.  I’d waited so long to hold him . . . I didn’t want a limit.

Not today.

I called my husband from the car.  Christian had arrived at work by 5 am and had put in a full day.  He’d told me over breakfast that he was exhausted and wouldn’t be able to drive to Philly to see John that night as usual.

“I just can’t do it, Beth.”

I’d understood.  We were beat.  The initial rush of adrenaline had worn off, and a cruel worry-monster threatened to take over.  Fighting the mounting stress drained us of every ounce of energy, and we found ourselves hard-pressed to keep putting one foot in front of the other.

I waited for Christian to answer.

“Hey, Sweets!”  Fatigue oozed through the phone.  Poor man.

“Hi, Christian!  Guess what?!  I held him!”

“You did?”  Pause.  I heard papers rustling in the background.

“YES!”  His chair squeaked as I imagined him standing.

“I’m going down right now!  Love you!”

The next morning, Christian called me from work to let me know he’d arrived safely.  Grinning and giggling, I couldn’t stop myself from asking the obvious.

“Did you hold him?”

“You bet, Sweetheart,” Christian said.  “All night long.”

Those weeks of waiting were some of the longest of our lives.  I still tear up thinking about it.  Yesterday, Abby and John climbed onto my lap and asked me to tell their birth stories, and when I got to this part, my eyes welled up with tears.

I squeezed John a little tighter.

King Solomon was right.  “Hope deferred makes the heart sick, but a longing fulfilled is a tree of life” (Proverbs 13:12 NIV).

Thank You, God, for our little tree!

A Smiling Six

Abby Mae turned six on Friday.

Her smile says it all.  I have zillions of pictures of her, but this one makes the top ten without question.  Sheer joy encompassed her in the Chuckie Cheese ticket blaster as she frantically grabbed at colored scraps swirling all around, shrieking with delight.

And to think I almost didn’t get to write this.

Nothing short of miraculous is her life.  Even her birthdate, 3-16, symbolizes the hand of God upon her soul.  I tell the whole story in one of my favorite blog posts titled 3-16, linked below.

https://drinkingfromthewell.com/2017/03/16/3-16/

 

Crazy Great Shirt

I’d thought we were out of the woods.

How quickly one seemingly small glitch nearly turned my son’s health down a disastrous spiral.

John was born with Gastroschisis, a birth defect in which the intestines are formed outside the baby’s body through a large hole in its belly.  Because John’s intestines were also blocked and required additional surgical intervention, the doctors initially gave him only a 15% chance of making it.

Praise God, he made it.

After four-and-a-half months in the hospital, John came home with an NG-feeding tube, which ran through his nose down to his belly.  He detested it and continually yanked it out.  The tube proved necessary because John threw up every time he ate.  The only reason the doctors had let him come home was because, in spite of the vomiting, he still gained weight.

Once we came home, our brilliant pediatrician, Dr. Scott Rice, started John on a motility agent, which solved the vomiting problem.  The tube came out, and we all rejoiced, thrilled to eliminate that source of irritation from his life.  Within the next two years, he dramatically improved and was eventually directed to stop all medication as he was discharged from the outpatient GI service, taking only probiotics for gut health and a standard children’s multivitamin.

So for the past five years, things had been going extremely well.  Until.

I’d lately detected an increasing resistance to his probiotic in the early fall.  His occasional vomiting episodes gradually increased, so much so that I began researching alternatives.  John is picky due to his sensitive gag reflex, and finding a new brand proved not only expensive but also fruitless.  Within a week, I realized how long I’d been out of the nutrition field and that I’d used up all of my dietitian know-how and tricks.

It shook me.

John needed help.  Before his gut stopped working.

It hasn’t happened since his discharge, and I was surprised by how intensely the thought of him regressing threatened to paralyze me with fear.  Even though many moons had passed since he’d had any problems, the nightmare of his hospitalization and ensuing medical crisis flashed back in an instant.  I fought the urge to panic.  As soon as I identified my “peace-snatcher”, I hit my knees.

“Lord, please help me find a permanent solution for John – and fast!”

Enter Aegis Boyer Stuart.

I’ve known Aegis a long time and have followed her from afar on Facebook, noticing her frequent posts about various nutrition products but letting them gloss right over me.

Until I needed something.  Desperately.

As a former Registered Dietitian, I had a bad taste in my mouth for alternative health products because I’d spent years dispelling myths to earnest weight-loss seekers and trying to spare my cancer patients from emptying their pocketbooks on bogus products designed to deceive, not heal.

But I knew I could trust Aegis.

I now considered for the first time what she had to say and clicked on her post about probiotics, now excited to learn about the available products and research how well-made they were.  I reached out to her, and she was extremely helpful, connecting us with a combination multi-vitamin/probiotic for John, praying it would work.

Thank God, it did.

He’s only vomited once since he started taking it, and I think that’s only because he ate candy on an empty stomach.  Amazing!  While I haven’t yet researched the rest of the product line, I’m proud to stand behind her Plexus XFactor Kids combined probiotic and multivitamin.  I ordered four additional bottles today.

As I typed a quick update/thank you message to Aegis this week, I realized that this wasn’t the first time God has used her to bring healing to my life.

I remember the first time I met her at church.

We were at one of the first gatherings of a new 20-30’s age group Bible study.  With eccentric flair, Aegis sported the grunge look and wore a T-shirt that declared, “Body piercing saved my life.”

Images of nose rings and ears laden with studs flooded my mind, and disdain rose within me.

Really?  How in the world could cosmetic body piercing and self-inflicted pain actually save?  

Looking back, I can see the upward turn of my top lip and sneering countenance, not understanding until she turned around and I saw the accompanying image that the pierced One her shirt referenced was her Savior.

My Savior.  God forgive me.

Years ago, I confess I had a profound aversion to non-traditional “church people”, not knowing what to do with them beyond exchanging polite formalities and general well-wishes.  They unnerved me.

I’d grown up in an ultra-conservative environment, one that strived to please God but was often tainted with cynicism and judgment, and when I traversed outside my whitewashed bubble, I found myself unprepared to handle and reconcile difference, somehow feeling like I was compromising if I allowed myself to consider things from a different angle.  I coped by displaying warmth and respect while inwardly harboring prideful contempt.

Hypocrite.

I ended up in her mom’s Bible study.  As I got to know Aegis and her family, I came to the painful realization that I had a serious heart issue, one I didn’t want to have, a poisonous cancer that if not lacerated and extracted would cause serious damage to my spiritual life.

Ouch.  But so worth the process.

Over time, as iron sharpens iron, God has used (and continues to use) people like Aegis to expose what He wants to change in my life.  Shortly after I was married, I asked my husband what he wanted for Christmas.  Totally in the dark about the past mess in my mind, he said, “I’d like one of those ‘Body piercing saved my life’ t-shirts that Aegis wears.”

Ha!

I think of her every time I launder it.  I owe much to this loving wife and homeschooling mother of two, this gifted entrepreneur and devoted follower of Christ.

Thank you, Aegis, for not only talking the talk but also walking the walk.  Thank you for spending much of yourself to help others find health and healing.  Thank you for wearing that crazy great shirt.

I rejoice with you for all the good God has wrought in your life and pray He continues to richly bless you and your precious family both today – and beyond.

A New Birth

27C

My son, John, turns five today. I can barely see the screen through my tears because John almost didn’t make it to his first birthday, let alone fifth. During the twentieth week of pregnancy, my husband (Christian) and I learned that John had gastroschisis, a birth defect in which his intestines formed outside his body.

Christian and I were stunned at first but later heartbroken and scared. The joy-filled visions of the coming baby flew out the window. A 20-minute appointment had changed our lives.

Forever.

We cried a lot. We prayed a lot, as did our family and friends. Finally, as much as we dreaded facing the ordeal ahead, God in His amazing way ignited our passion and gave us the courage, hope, and strength to fight for the life of our son.

So, we took a big breath and moved forward.

Over the next seventeen weeks and then another four-and-a-half months in the hospital, John never gave up. By his sheer determination and the greatness of our God, he survived. He continued to thrive, growing and gaining weight at a normal rate. Within his first year, he no longer needed his feeding tube, and by four years of age, he came off all medication.

Thank You, God!

I cannot think of a more appropriate date on which to launch this blog. My husband wrote our family’s first post on John’s CarePage blog at my bedside minutes after his delivery.

Today, our family’s challenges have given birth to another blog, Drinking from the Well. By using everything we’ve learned over the past five years, we look forward to helping families not only survive difficult circumstances but also thrive, whether they find themselves in active crisis or beyond.

Happy Birthday, John. I love you!