All Night Long

Have you ever wanted something so terribly that you ache inside?

The only thing a mother wants to do immediately after giving birth is hold the baby.  She can not get that child into her arms fast enough, and once there, she can at long last gaze into the eyes of her little one.

I didn’t get to hold John for his first 22 days.  It nearly killed me.

Because John’s intestines were exposed in utero, he was at high risk for contracting infection upon delivery and beyond.  Even though the team did a great job containing his intestines in a plastic “silo” bag, the hole in his stomach was wide and painful, hence no holding until a series of three surgeries cinched it shut.

During those eternal weeks of waiting, my maternal instincts nearly drove me mad, and Christian and I did everything we could to get as close to John as possible.  We held his little hands and stroked his tiny foot (the other bore an IV).  We kissed his forehead and brushed his cheeks around the medical tape.  We clung to every touch and did our best to let him know we loved him and hovered near.

One fine day, a surgical nurse showed us how to slide a hand, palm-side up, under his shoulder.  We were all smiles as we took turns, sharing this new means of snuggling our son.  Part me initially felt ridiculous rejoicing in something seemingly small when compared with the end goal, but it felt so good to stroke his back and feel him press into my hand.

He yearned for more, too.

I’ll never forget walking onto the unit with my father that twenty-second day.  John’s wonderful nurse, Cathy, saw me and smiled.  After I greeted my sleeping son, I walked over to sit in the rocker.  Cathy’s smile disappeared as she watched me settle in.

“Mom – aren’t you going to hold him?”

I gasped.  “Can I?”

“Haven’t you held him yet?”  I shook my head, breathless.  “Let me check, but since Dr. Flake has closed his belly, I see no reason why not.”

She bustled away while my dad and I exchanged excited glances.  I couldn’t see his face (we’d both gowned and masked due to the Swine Flu epidemic sweeping the nation), but our eyes said it all.  Nurse Cathy bustled back into the pod, beaming.

“It’s a go!”

I squealed with delight and rushed to wash my hands as she set about untangling John’s tubes and wires, sensing the urgency of getting this boy into my arms.

All at once, he was there, staring up at me, so beautiful.  I could barely see him through my tears, smiling all the while.  He tolerated it for about five minutes and then grew highly agitated without a solid bed beneath him, so I returned my little bird to his nest.

Within ten minutes, he’d changed his mind and called to me so sweetly.  I rushed to his side and complied with his request.  This time, he didn’t look back as he settled in for the long haul, falling asleep, his face awash with peace.

I didn’t want to leave.

My sweet Hannah needed me back in Macungie that evening, so all-too-soon, my dad tapped my shoulder.  He’d sacrificed holding his grandson so that I could enjoy every minute.  It took everything in me to tear myself from John’s side, but I finally mustered the strength.  Thank God he was sleeping – I don’t know if I could have done it otherwise.  I’d waited so long to hold him . . . I didn’t want a limit.

Not today.

I called my husband from the car.  Christian had arrived at work by 5 am and had put in a full day.  He’d told me over breakfast that he was exhausted and wouldn’t be able to drive to Philly to see John that night as usual.

“I just can’t do it, Beth.”

I’d understood.  We were beat.  The initial rush of adrenaline had worn off, and a cruel worry-monster threatened to take over.  Fighting the mounting stress drained us of every ounce of energy, and we found ourselves hard-pressed to keep putting one foot in front of the other.

I waited for Christian to answer.

“Hey, Sweets!”  Fatigue oozed through the phone.  Poor man.

“Hi, Christian!  Guess what?!  I held him!”

“You did?”  Pause.  I heard papers rustling in the background.

“YES!”  His chair squeaked as I imagined him standing.

“I’m going down right now!  Love you!”

The next morning, Christian called me from work to let me know he’d arrived safely.  Grinning and giggling, I couldn’t stop myself from asking the obvious.

“Did you hold him?”

“You bet, Sweetheart,” Christian said.  “All night long.”

Those weeks of waiting were some of the longest of our lives.  I still tear up thinking about it.  Yesterday, Abby and John climbed onto my lap and asked me to tell their birth stories, and when I got to this part, my eyes welled up with tears.

I squeezed John a little tighter.

King Solomon was right.  “Hope deferred makes the heart sick, but a longing fulfilled is a tree of life” (Proverbs 13:12 NIV).

Thank You, God, for our little tree!

Almost There

Never in a million years did I think I would make a music video.

Thanks to Bob Lockwood of Full Armour Studios and Indie Studio Space, the filming stands complete.  My wonderful husband, Christian T. Morgan, is in the midst of the editing process, putting it all together in order to produce the best snapshot into the story behind the song.

Our story.

I finished the book manuscript at the end of August 2017, but something surprising happened a few days earlier.  One night while attempting to capture a particularly difficult scene, I found – to my horror – that I couldn’t write.

Searing emotion poured out, disconnecting thoughts from pen, wreaking havoc on pretty paragraphs and pages.  All I could do was bullet my fragments of thought, lashing them onto my rumpled legal pad, its yellow pages bearing black streaks and slashes.  I tried to force myself into some kind of solid format, something usable with which I could finally complete the work.  I was so close!  I’d put off writing this scene long enough, and I knew I had to face it.

The hour had come, and here I was.  Struggling.

After wrestling for thirty minutes, I tossed everything proper and poised aside, threw my inner thoroughbred the reigns and let it run wild and free, rushing across the page, leaping high and falling low, rolling and trotting, gaiting then halting.  Panting.

Weeping.

The paper I then held in my hands no longer resembled a book chapter, structured and formed.  It was a stand-alone piece, a tale of a perilous journey though unchartered waters, breathtaking yet ominous, heart-wrenching but beautiful.

It was a song.

I’d written only one other for my husband’s 30th birthday, and the process had proven quite different.  God had been writing this new song on my heart for years, but I’d had no idea it was in there.

After the words were down on paper, I took them over to my keyboard and started messing around.  Christian passed through the room and stared at me.

“What are you doing?”

“I don’t know,” I said.  “I think I’m writing a song!”

His mouth fell open.  “You are?”

“I think so,” I said, nodding, eyes wide.  We stared at each other and then at the keyboard and then back to each other.

He smiled and said, “Keep going,” as he walked out of the room.

Within three days, it was finished.  My first stab at songwriting also birthed an idea for a video portrayal of what some of the days were like for us over the past several years.  Our hope and prayer is that families everywhere would be encouraged, helped, and drawn close to Him through our family’s story.

Please pray with me during these final days of revision that God would bless and protect our efforts to communicate with the world how well He has Carried & Kept us through our darkest times.

I cannot wait to share it with you!

 

Ironman Fran

“Hey Beth, Tony texted me.”  Drawing near the kitchen table, my husband paused as he placed a hand on my shoulder.  “Frannie passed out, so he called 9-1-1.  They’re at the hospital.”

I hate news like that.

We’ve borne far beyond our share of bad calls within our family over the years, but to receive one pertaining to my dear friend, Fran Lombardi, rattled my cage.  In an instant, my Cheerios® and banana breakfast became pebbles in my mouth, the rest left behind in the bowl, morphing into a soggy, pasty mess.

It’s amazing how one phone call can jolt us out of the present, thrusting us into the reality of our own mortality.

Please, Lord!  Not Frannie.

I’d met Frannie two years ago at a church retreat, and as we chatted over a cup of tea, I found her to be one of the most positive people I’d ever met.  Over time, we became dear friends, as I gleaned much from her quiet, gentle spirit and loving ways.

I didn’t want to lose her.

Thoughts raced like Thoroughbreds through my mind as I fumbled for my phone.

Dehydration?  Heart attack?  Stroke?  I gulped.  Cancer?  

I shook my head.  Stop diagnosing, Beth, and call Tony!

I punched in his number.

Her husband didn’t answer, but Christian and I offered our prayers and support on voicemail.  We rushed the kids through breakfast, and as I began getting them dressed to go to the hospital, we got word that Frannie was okay.  Earlier in the week, she’d caught a cold, and the ER doctor believed that the OTC the medication she’d taken had caused her blood pressure to bottom out.

Thank God!

Frannie is a Stage IV lymphoma survivor.  She’s enjoyed remission as long I’ve known her, but the what-if has reared its ugly head the few times something unusual has happened.

Like when she and I had planned to race the Demarest Triathlon together back in June of 2016.  It was my first race, her third, and we were excited.  We trained hard.  Our amazing husbands supported us like crazy, and somewhere between homeschooling and writing, I squeezed in my workouts in preparation for the sprint distance event.

Roughly one month before race day, I got the call.

“Frannie’s in the ER.”

She’d been over-training, gotten dehydrated, and simply tanked, but the whole experience shook us all and left sweet Frannie completely wiped out.  We all knew she shouldn’t race, but hats off to Tony for the way he handled it.

“It’s her decision.”

Frannie chose not to race, but selfless as usual, she encouraged me to compete.  I hesitated, but when I saw how much it meant to her that I continue, my mind was made up.

Press on, I did.

The remaining training proved nothing short of grueling for me as I dealt with the “knowing” Frannie wouldn’t compete, but her episode at the hospital stirred something inside me, a growling, burning passion that compelled me to move forward, faster, father.  Gratefulness that her cancer had not resurfaced surged within me, and when June 6th arrived, I stood ready at the start.

I raced alone.  For Frannie.

For all of her seemingly wasted hours in the pool, on the bike, and on the road.  For all the disappointment she’d surely felt for not being able to race the tri herself.  For all of the recent fear she’d had to face and the questions her heart had undoubtedly asked.

For the fact that she was alive and cancer-free!

And there she was, on the sidelines, cheering me on every step of the way along with Tony, Christian, and the kids.  She’d poured all of her disappointment into one big lump of encouragement, offering me strength in spite of her weakness, the epitome of a precious friend.

Thank you, sweet Frannie, for your millions of smiles and thoughtful words.  Thank you for loving on my kids and calling them precious.  Thank you for making the calls that count and being our family’s friend through every storm.

A friend [who] loves at all times. (Prov. 17:17)

Frannie went on to race the following year.  I had to sit out due to injury, but I look forward to racing with her (Lord-willing) this summer.

What an honor it was to watch her run, bike, and swim (with our families and our good friend, Mark), to cheer her on from the sidelines, to witness these special moments of victory in her life!  I don’t remember who had the best official time that day back in August, but I will forever remember the winner.

Iron Man Fran.

Please click the link below if you’d like to see Iron Man Fran in action:

A Timely Reminder

It’s finally done.

After years of living it, writing it, and praying over it, the manuscript and full proposal for my book, Carried & Kept Through the Hospital: A Provider, Patient, and Parent’s Perspective, stand complete and ready to head to the literary agent I at a conference who was interested in representing it years ago.

I pray she still is.

God’s timing is perfect.  While I sat in the River Edge Diner (locals have dubbed it the R.E.D.) on Monday night madly typing, a waitress approached me, peering at my screen.  She’d taken care of me before, and even though I had not been seated in her station, she’d wandered over to say hello.

“What ‘cha writin’?”

I told her briefly about my blog, Drinkingfromthewell.com, and its purpose, to help families during crisis and beyond.  Her face paled as her eyes clouded with tears.

“I sure could have used that.  My brother died in May of 2016 of ALS.”

She launched into a heart-wrenching account of her family’s struggles with his diagnosis,  their difficulties in acquiring resources for his care, and the toll it took on all of them.

Her story moved me.  Hers was the face of why I sat surrounded by piles of papers at a greasy spoon in the late evening hours, urgently refining pages crammed full of information that I believed would help families in their most desperate hour.

Families just like hers.

How timely the reminder.  As I finalize the proposal to send out tomorrow, please join me in praying that God would open doors far and wide for our family’s message of hope, help, and healing.  May many hear and be blessed.  May many be helped and find hope.  May all turn to Him, that He may carry and keep them.

Always.

Strategic Planner

Do you enjoy personality/strength/weakness tests?  I do.

A few years ago, I took one located in the book titled Now, Discover Your Strengths by Buckingham and Clifton.  The questionnaire proved similar to most I’d previously taken, but the labels for the end results were uniquely termed.  And I liked it because I felt that it not only gave an overall great assessment but it also pegged my number one strength to a T.

Strategic planning.

When I think of great strategic planners, two amazing women come to mind.  My mother and my good friend, Wendi.

The kids and I had the pleasure of spending an entire six hours yesterday with my dear friend, Wendi Fulton Wetzel Pickel.  There’s much wisdom to be had in this little 50-something package, who kindly delivered herself to my doorstep that damp February morning.

I’d met her seven years ago during one of my darkest seasons.  She’d contacted me online regarding a book I’d written, and after chatting back-and-forth, we realized that we’d both planned to attend the same fundraiser for Kenyan orphans in Philadelphia and took the opportunity to ride together.

It was a Divine appointment.

John had been home from the hospital roughly six months when I popped into Wendi’s car.  Even though medically he was doing great, my husband and I found ourselves in the midst of a marital mess, mopping up after our son’s crisis had passed.

I have no idea to this day what made me do it, but I dumped my bucket to this sweet, compassionate, total stranger.

I’m so thankful I did.  She’d been through nearly the exact same thing.

God paired us up that night, as she became intimately acquainted not only with my family but also our troubles.  Because of her incredibly challenging life experiences, she was uniquely qualified to walk beside me through mine.

She has listened for hours upon hours.  She’s done my dishes and brought me ice packs, she’s met me in hospitals and made me oatmeal, she’s cared for my children and spent countless hours boldly loving, pouring herself unreservedly into my life.  A fabulous sounding board, yet discerning and wise, unafraid to be a truth-teller, a blessed one who holds me accountable to biblical principles.

I thank God for her.

Wendi couldn’t stop smiling as she watched the kids play yesterday.  “It’s amazing to watch them together,” she said as she shook her head.  “They look so normal – so healthy, so happy.”

She saw them at their worst.  The meltdowns, the feeding tubes and oxygen tanks, the downward spirals.  I’ll never forget a bittersweet moment when Abby turned a corner after a difficult bout in the hospital and was unexpectedly discharged early.  We were ecstatic . . . but I had no idea how we were getting home.  The timing seemed terrible.

Until I called Wendi.

All she said was, “Great!  What’s the exit?” as I heard keys jingling and feet walking . . . and then the car door closing.

She’s been through much – I have great respect for her and have found her amazingly gifted at helping others during crisis because she knows how best to survive them.  Through much adversity , God has made her shine like the sun into the lives of many in their darkest times.

He’s even taking her international.

This brilliant retiree has met her unexpectedly challenging life-stage head-on as she and her wonderful husband, Tim Pickel, have channeled their energies wisely and well.  They’ve partnered with a missions organization founded by Larry Roth and Marsha Roth called OneMillionChildren, which serves to bring clean water, medical care, and the Word of God to one million children in Africa.

 

Thank you, Wendi, for all you’ve done to lift me up and walk with me in this life.  Thank you for your steadfast example and countless selfless acts.  Thank you for your wise counsel and uncompromising quest to strategize what’s best for everyone.

Thank you for being an absolutely wonderful friend.

I praise the number one Strategic Planner for allowing our paths to cross in this life – I’ve already put in a request for a regular time-block with you in eternity.

May He continue to use you to bless many as He richly blesses you and Tim and the work of your hearts and hands both today – and beyond!

 

Love Walking

You would never have known I had purchased the plain black, somewhat saggy umbrella at a dollar store had you seen the radiant smiles emitted from beneath its cover.  My four-year-old and I giggled as I wrapped my arms around her like a mother pretzel and made our way into school all snuggled up, holding hands.

So sweet.

Abby tilted her head to the side and leaned into me, smiling, smitten by the beauty of the moment.  We sauntered slowly across the lot, savoring each step, making a memory.  As we approached the security guard, Abby glanced up at him.   She’d never before uttered a word in his presence, but today, she could not contain herself.

“We’re love walking.”

He had grinned at our approach, but when he heard her explanation, he nodded straight-faced.

“Love walking, yes.  Yes, you are.”

He and I exchanges smiles.  I floated to class with my Abby Mae, not wanting the moment to end.  When we reached her room, she pulled my head down and kissed me fast and firm.

“I love you, Mudder!”

I walked back to my car alone, remembering the countess times I’d crossed a parking a lot just to be with her.  That particular lot never saw rain.

It stood beneath The Children’s Hospital of Philadeplia.

Over the course of several months, this massive gloomy dungeon of a garage bore little light, happiness, or hope.  I will never forget the oppressive, smothering feeling that would overtake me as my SUV lumbered through the entrance, sinking lower and lower into the quagmire of emotion and unknown below.  The dim lighting, bland concrete walls, and blunt yellow lines provided no comfort, serving only to highlight my heartbreaking reality.

Parents from all over the world walked this very lot, not knowing whether their child would live or die.  The unwelcome enemy loomed around every corner, waiting to send families home with empty carseats and devasting loss.  We all prayed that today would not be our turn.

Some have loved and lost.  Some have experienced joyful discharge celebrations and have whisked their child away, never to return again.  Some are still there.

All of my family is finally home, praise God, but I still remember.   Every day I pray for the families going through hospital crisis, praying that one day they would finally cross the horrible yellow parking lot lines and carry their children home.

Yellow is Abby’s favorite color.  She loves yellow parking lot lines and relishes the opportunity to balance beam her way across them.  I find it ironic how her sunniness often defies all logic, the amazing way she brings quiet out of the corner, giggles to the lips of lonely, and joyous song out of sorrow.

Adversity has made her shine.  I checked my watch and sighed.  Only 8:32 am.  It would be a full three hours and five minutes until I picked her up.

May it be raining when I return.

PAPER AND PLASTIC

Plastic Utensils in Cup

by Beth Ann Morgan

Sometimes crisis situations cause a rethinking through every process involved in daily living. When you’re down to your last fork and dinner plate, it’s time to consider making a temporary switch to an immediate time and clutter saver: disposables.

I initially recoiled at the idea of using all paper plates and plastic utensils. Eating like this reminded me of the hospital cafeteria, and during the few nights a month when I actually got to sit at my kitchen table, I wanted to use real plates and silverware. But the pileup in the sink waiting for me in the morning prodded me to reconsider.

The following weekend, I arrived home to find packages of paper bowls, plates, and cups with an enormous box of plastic ware on the counter along with a note from my husband.

Please don’t use anything that needs to be washed!

It made sense, and he was right. While I hated pouring money down the drain, the time disposables saved us was invaluable. We had no room for dirty dishes as our counter space was already filled with multiple lists and instruction sheets, pumping supplies, NG tube placement supply and diaper baskets, medication bins, etc. Clutter threatened to consume us. We fought upstream to manage it all to the best of our ability with lots and lots of help.

Abby has only been stable for one year . . . December to be exact. We were all teary-eyed as we prepared to celebrate the holidays, remembering what it had been like in years past, both the good and the bad, and then we shared our joy about being home and healthy together this year. We’re so grateful. Intent on enjoying today, taking time to heal together.

The whole experience changed me forever. While I still appreciate a pretty place setting, the moment is fleeting in the face of what matters most.

On Christmas Eve this year, I didn’t flinch when I picked up our Boston Market rotisserie chicken meal (I can’t handle cooking big holiday meals yet – ordering out helps me relax while feeling like everyone can enjoy a special meal together – I highly recommend it).

“Ma’am, would you like disposable plates, utensils, and cups?”

“Yes, please!”

 

TAKE 20 MINUTES

OTRAS (4)

by Beth Ann Morgan

It’s all too easy to turn into a machine when things get tough. Days can go by without a decent shower, nutritious food, and solid sleep. No time to process the raw emotional journey, no strength to complete more than the most basic of chores. Go, go, go until sheer exhaustion forces you to collapse, only to find yourself waking the next morning with reality thrusting you into the same mode of survival.

I would encourage you to take 20 minutes.

I remember the first time I realized the value of doing this shortly after heading in to see John one day at the hospital. After driving for an hour and 15 minutes, I felt keen disappointment when the unit clerk informed me that an emergency surgery was underway in the pod, and I would not be allowed to see John for at least another 20 minutes.

“You’re free to go wherever and get a little time to yourself. I’ll announce it over the loudspeaker when the procedure is finished.”

I thanked her and then shuffled back down the hallway. All of the rushing around earlier that day and fighting the traffic, then hurrying upstairs . . . and now to sit? I didn’t know what to do with myself. I admit, I was shocked.

I remember heading to the waiting area and sitting for a full ten minutes. Just sitting. I watched the siblings of patients play, parents and grandparents exchange nervous conversation with tissues in hand, anxious bystanders mumbling into cell phones and running their fingers through their hair.

Compassion washed over me as my eyes filled with tears.

I got out my journal and began to write for another ten minutes. I poured out my heart like water by writing my prayer to the Lord, praying for every broken heart in the room, for every sick and hurting child, and for God to help us all.

Your days and nights might seem to run together, but give it a try whenever you can. Set your timer for 20 minutes. Let yourself sit and do nothing. Allow your thoughts to happen. Pray. Journal. Mediate on a Bible verse. Whatever it is that helps you process what’s going on around you.

And when the timer rings, you’re done. I personally find myself refreshed. My circumstances probably didn’t change, but my load has lightened a little.

I pray yours will, too.

PORTABLE OFFICE SUPPLY KIT

office on the go

One of the things I wish I’d known a lot earlier in my hospital journey was the benefit of carrying basic office supplies with me. I can’t tell you how many times I wished I’d had a pen and paper. Even something simple like a small zippered pouch with pens, paperclips, sticky notes, and scissors would have saved me numerous trips to the unit clerk’s desk or down to the gift shop.

When my mother and sister were in a terrible car accident, I knew they’d stay in the hospital for quite some time. The impact had torn my sister’s right arm from the socket.   And when the surgeon went in to repair my mother’s broken ankle, he later told us the bones had been smashed into pebbles.

With such massive reconstructions and healing involved, many people from multiple disciplines assisted in my family’s care over a prolonged period of time. Physicians, nurses, therapists, social workers, pastors, neighbors, friends, insurance agents, homecare, outpatient treatment, medical supply companies, etc. Keeping everyone’s contact information and documentation straight could quickly have become a nightmare.

I scurried home and opened nearly every drawer, cupboard, and under-the-bed rubber bins. Finally, it stood ready, a large black accordion folder complete with hastily but lovingly assembled products for my family to use during their journey. Perhaps this simple collection of supply items will come in handy for yours as well.

Photo courtesy of decorating files.com via Pinterest

Pictured above: A dish drainer outfitted with cute files and assorted office supplies makes a great portable office. 

TOILETRY BAG

Toiletry Bag

by Beth Ann Morgan

Have you ever REALLY needed to take a shower in a situation where the only resource you had to facilitate the process was running water? The experience can prove helpful but unsatisfying.

Back in 2005, I traveled to Kenya with a medical team to speak at a conference, conduct interviews for Benard’s Vision: The Quest of a Kenyan Pastor, and assist in treating over 1200 patients.

It was the trip of a lifetime.

My team got to see and do so much, but one place I visited unexpectedly was The Aga Khan Hospital in Kisumu. I’d eaten a peanut butter and tomato sandwich, and even though I’d removed the tomatoes, I still got sick from the juice that remained.

After my body violently rid itself of the sandwich, my blood pressure began to drop. I’m prone to fainting, so this didn’t surprise anyone. Our team leader, Dr. Scott Rice, asked our host, Pastor Benard Ondiek, for an ambulance to transport me to the hospital.

His entire community moved heaven and earth to get me all the help I needed, and it humbled me greatly. They’d moved out of their houses for two weeks so that our team could move in and be comfortable. They’d sacrificed greatly to feed and protect us. And then they’d loaded me into the only ambulance in the county.

Their selflessness was beautiful to me.

The trip to the hospital was long, fodder for future posts. On the way, I realized I had nothing with me and wondered how long I would stay. The staff admitted me to the VIP suite, which had a private bed and full bathroom.

But no toiletries.

Sometimes there is no time to grab a pre-packed toiletry bag, but if there is, I recommend standing ready.